I AM A RESIDENT OF PEACHTREE CITY SINCE 1984 SUFFERS FROM THE MOST RARE DEBILITATING DISEASE KNOWN TO MEDICINE: FIBRODYSPLASIA OSSIFICANS PROGRESSIVA MUSCLES, LIGAMENTS, TENDONS TURN TO BONE IMMOBILIZING THE BODY TURNING ONE TO A HUMANE STATUE. JUST 1 OF 700 CASES WORLDWIDE. MISDIAGNOSED AT 3, SUFFERED A NEEDLESS ARM/SHOULDER AMPUTATION. IS A MEMBER OF THE IFOPA-INTERNATIONAL ORGANIZATION THAT MAINTAINS, SUPPORTS RESEARCH FOR THE CURE SINCE THE GENE DISCOVERY IN 2006. CURE FOP!
Wednesday, March 9, 2011
ALL AMERICAN 5K
Very excited to announce that the American 5K Run/Walk will again be held on Memorial Day Weekend, Saturday, May 28. Last year‘s inaugural race was a great success as a benefit for Lt. Dan Berschinski. I got to meet Dan in October 2009 when he was recovering at Walter Reed. I was in DC speaking before Congress about FOP. This year, the proceeds in honor of me, go to the IFOPA.
The International FOP Association (IFOPA) is a 501(c)(3) non-profit organization supporting medical research, education and communication for those afflicted by the rare genetic condition Fibrodysplasia Ossificans Progressiva (FOP). Our mission is to eliminate FOP as a health concern through education, advocacy, research and support. April 26, 2006 the FOP gene was discovered. We are now just waiting for the cure! We need your help!
OUR #1 GOAL - CURE FOP!!
Thanks to the Peachtree City Running Club, Carolyn Gulick, the Berschinski's, and everyone else involved to make this event great and successful!
To register for the All American 5K as a Runner, Walker, or Phantom Runner, click: HERE !